Gannon Greeks Donate $2500

We had the pleasure of working with the Greek organizations of Gannon University this past semester. All the organizations came together to work on their first ever Gannon Greek Ball. Tonight they presented us with a check for $2,500!!! We explained to them how much of an impact they had on not only us, but the people we serve. A special thanks to Chip Oberle who was the young man that made all this happen! Don’t be surprised if you hear about big things from this young man someday. He and his peers are outstanding individuals, and we are pleased to have them as ambassadors.


Articles of Interest, CBD Oil


There has been a lot of talk regarding the use of medical marijuana or CBD oil, for use in treatment in epilepsy in the news lately. I just wanted to share a few articles of interest on the topic. We are by no means experts on the subject, but I think as a parent of a child with epilepsy I would want to do all of my due diligence regarding their care, medications, and treatment options.

Cannabis Helps My Epileptic Son

A patient’s tale of medical marijuana use

If only we had known sooner.



A few books that have gotten us through our grief

Nothing about losing a child is easy. Nothing. But in the days, months, and years (*sigh* we are coming up on the 2nd anniversary of losing Alyssa) I needed to know SOMEONE out there knew what I was feeling. The pain is unlike anything you could ever imagine. I would rather have my heart ripped out of my body then to ever feel even an ounce of this grief. Some days I would be so sad, or angry that I just couldn’t turn the tv on, yet the sound of silence was deafening. I turned to books, as they have always been a comfort, and hobby that I have enjoyed. After Alyssa’s passing many friends, family members, even strangers bought, sent or recommended books for us to read. I would like to share that list with you now. It is my hope that if you are the parent of a child who has passed that one of these could bring you even a second of comfort.

Beyond Tears: Living After Losing a Child, Revised Edition

Jesus Calling: Enjoying Peace in His Presence

Proof of Heaven: A Neurosurgeon’s Journey into the Afterlife

Heaven is for Real: A Little Boy’s Astounding Story of His Trip to Heaven and Back

The Worst Loss: How Families Heal from the Death of a Child

Chicken Soup for the Soul: Messages from Heaven: 101 Miraculous Stories of Signs from Beyond, Amazing Connections, and Love that Doesn’t Die

There’s More to Life Than This: Healing Messages, Remarkable Stories, and Insight About the Other Side from the Long Island Medium

These were wonderful resources for my young children: 

The Invisible String

The Next Place

Heaven is for Real for Kids: A Little Boy’s Astounding Story of His Trip to Heaven and Back

Jesus Calling: 365 Devotions For Kids

If you have read any of these and would like to leave your thoughts we would really appreciate it. If you have any others to recommend, I am always looking for new reading material.


The 2nd Annual #AJO Pay it Forward Festival and Poker Ride For Epilepsy Awareness

This year we chose to celebrate what would have been Alyssa’s 20th birthday in a big, fun, family friendly way. We decided alongside the Poker Run we would hold a n all day, family fun day! We had bounce houses, a magician, Anna & Elsa from Frozen, water balloons, games, prizes, food and so much more. It was a birthday to remember, that’s for sure!

We were able to raise a substantial amount of money, which should in turn be able to help, many, many families! We are excited to be able to give back to others that have been so generous with us the past (almost) 2 years. Enjoy the pictures, and mark your calendars for next year!